Quality of life and family: dimensions and tools for an integrated approach

TitleQuality of life and family: dimensions and tools for an integrated approach
Publication TypeJournal Article
Year of Publication2018
AuthorsDi Stefano S, Antonini C, Sgaramella TM
JournalInterdisciplinary Journal of Family Studies
Date Published12/2018
PublisherPadova University Press
Place PublishedPadova, IT
ISSN Number2282-2011
Keywordsassessment instruments, family, individuals with disability, life domains, quality of life

Quality of Life (QoL) is a central theme in studies involving individuals with intellectual disability and their families. Basic principles and a recent model developed in these research will be described. Main findings and issues from studies on QoL described by individuals experiencing disability or its consequences will be then reported. In more details the most recent framework for the analysis of Family Quality of Life (FQoL) will be described, together with useful instruments and main findings associated with these researches. Finally, components for an integrated assessment approach will be outlined. The conceptual framework, the dimensions and the instruments developed can contribute to a better understanding of quality of life experienced in complex situations, in finding new strategies and goals for professionals interested in addressing this complex theme and working for wellbeing of individuals and families experiencing diverse complex conditions.